September was a bad month for us! I'd like to forget it actually. Mr MS came for a nasty visit. Yes, my Multiple Sclerosis is male in my head, for some reason.
He showed up one evening in the form of a major arm ache, then spread to muscle twitching, cramping and ulitmately complete weakness in my left arm and leg. I couldn't walk very well. My right side was feeling pins and needles, the sensation of bruising and later burning. I couldn't put toothpaste on my toothbrush, and definitely could not care for my children!
They truly are the heroes of this episode! They had to make lunches, fold laundry, carry things, even help mom down the stairs. All things that I want them to know how to do and practice out of the goodness of their hearts. But being the reason they are required to do it is HARD!
Nate and my hearts were broken by this flare up. We were convinced we had this part of our lives under control. MS has this hazy future of the unkown. But since my symptoms up to this point were annoying, but not debilitating, we were hopefull and confident.
We were feeling pretty low. Mom came and helped us get over the hump. She cooked and froze big batches of food. She drove me around to Drs appointments, tests. She took kids to soccer, piano, etc. She kept me company and made sure I was able to get around, open ziploc bags, drive, heat up some dinner and take it easy before she left.
Of course she wanted to do this for her daughter, but I am forever grateful for her giving nature and to be the recipient of it this time!
I have always tried to keep my MS somewhat private. I have for some reason been telling people more over the last few months. Everytime I have mentioned it I have thought, "Why did I just say that?" But as I have gone through this month I am relieved that those who knew were not all out of state! As much support as was given, I still felt lonely and defeated.
So, my prognosis is still great. I haven't had a relapse in 4 years! If it lasts that long again, I'll be happy and that is still likely. I'm still recovering and taking it easy. However, I have started Yoga and light walking and that feels good.
Thanks to all who have supported me through the years. I have been stobborn and defensive of my independence. But my family and friends have always been there for me and I am so thankful! I hope I don't hurt any of your feelings by telling you this way. To be honest, I didn't want to talk about it and holding the phone was tiring.
I have a husband who takes good care of me and we'll be fine with all your love and support!
THANK YOU
3 comments:
Jen,
I think you are one amazing woman! Your positive outlook and dedication to everything you do are just a few of the things I admire about you. I hope when I grow up I can be an awesome mom just like you......wait, uh, I'm totally older than you! I mean I look to you as a wonderful example of the kind of mom and friend I want to become. Good luck and come visit!
Jen, what a miserable experience! I'm so glad sweet Aunt Linda came to the rescue, not surprised! Your parents' giving hearts were definitely passed to their children. We love you and pray for you! You're a superhero!
Thanks for sharing this, Jen. Here's hoping to another 4 years without Mr. MS showing his ugly face!! Can't wait to see you.
Anna
Post a Comment